Achieving Fair and Equal Access to Vaccination for Persons with Disabilities in Indonesia
A Lesson Learned from the Vaccination Programme in the COVID-19 Outbreak
DOI:
https://doi.org/10.19184/jseahr.v8i2.35534Keywords:
COVID-19 vaccine, Persons with Disabilities, Equal access, Human Rights Obligation, IndonesiaAbstract
The World Health Organisation has recommended that its member states conduct national vaccination programs based on fair and equal access principles. COVID-19 has had more severe impacts on persons with disabilities (PwDs). This article focuses on how the provisions of international human rights instruments obligate countries to provide vaccination for PwDs. Further, these provisions will be used to analyse the law and policy adopted by the Indonesian government related to the vaccination program designed for this group. This article used both normative/doctrinal and empirical legal research methods. Based on international human rights law, access to vaccines and medical technology are elements of the right to health under the AAAQ principles. Member states should consider groups’ vulnerabilities, risks, and needs when designing the vaccination program. Some groups risk experiencing a more significant burden from the pandemic due to underlying social, geographic, or biomedical factors. PwDs are people coming from diverse backgrounds. Thus, the challenges they face will vary according to age diversity, gender, types of disability, ethnicity, sexual orientation, and migration status. The results show that Indonesia, during the first vaccine rollout, did not explicitly mention disability as a priority. PwDs have experienced barriers in accessing vaccination due to a few persistent problems. In the future, national vaccination programs should include measures to overcome such barriers and ensure that PwDs have equal access to the vaccine and other healthcare services. Such access will enable the fulfilment of the right to health of the PwDs as guaranteed both under international human rights law and domestic law. In addition, future healthcare policy should put PwDs at the centre and address the unique needs and preferences of disabled people, including their cultural and language requirements.
Keywords: COVID-19 Vaccine, Persons with Disability, Equal Access, Indonesia
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References
Agbelie, Chris Mike, “Health system access challenges of people with disabilities increased during Covid-19 pandemic” (2023) 16 Disability and Health Journal 101446.
Ajeigbe, Olufunke et al, “Culturally relevant COVID-19 vaccine acceptance strategies in sub-Saharan Africa” (2022) 10:8 The Lancet Global Health 1090–1091.
Amani, Asef, “Dinkes Kabupaten Magelang Mulai Vaksinasi Ibu Hamil dan Disabilitas”, Suara Merdeka (August 2021).
Ansori, Ade Nasihudin Al, “55.158 Penyandang Disabilitas Sudah Vaksinasi per 29 Agustus 2021”, Liputan 6 (2021).
Antara News, “Vaksinasi penyandang disabilitas butuh penerapan lebih inklusif”, ANTARA (2021).
Arifin, Bondi & Titik Anas, “Lessons learned from COVID-19 vaccination in Indonesia: experiences, challenges, and opportunities” (2021) 17:11 Human Vaccines and Immunotherapeutics 3898–3906.
Banerjee, Debanjan & K S Meena, “COVID-19 as an ‘Infodemic’ in Public Health: Critical Role of the Social Media” (2021) 9:March Frontiers in Public Health 1–8.
Banerjee, Debanjan et al, “COVID-19 Vaccination: crucial roles and opportunities for the mental health professionals” (2021) 8:e25 Global Mental Health 1–6.
Bielińska, Katarzyna et al, “Equal access to healthcare in national legislations: how do Croatia, Germany, Poland, and Slovenia counteract discrimination in healthcare?” (2022) 22:1 BMC Health Services Research 1–11.
Brock, Dan W, “Priority to the Worse Off in Health Care Resource Prioritization” in Rosamond Rhodes, Margaret Battin & Anita Silvers, eds, Medicine and Social Justice: Essays on the Distribution of Health Care, 2d ed (Oxford: Oxford University Press, 2012) 155.
Chiluba, Brian, “Barriers to Health Care for Disabled People: A Review of the Literature from Low Income Countries” (2019) 6:2 IJDS Indonesian Journal of Disability Studies 210–214.
Davis, Kathy, “Intersectionality as buzzword: A sociology of science perspective on what makes a feminist theory successful” (2008) 9:1 Feminist Theory 67–85.
Dinas Kominfo Provinsi Jawa Timur, “Pemkot dan TP PKK Kota Surabaya Akan Gelar Gebyar Vaksinasi bagi Penyandang Disabilitas”, (2021), online: Dinas Kominfo Provinsi Jawa Timur.
Dinas Sosial Kota Surabaya, “Kejar Target Vaksinasi, Pemkot Surabaya Sasar ODGJ, Disabilitas, dan Difabel”, (2021), online: Dinas Sosial Kota Surabaya.
Epstein, Sabrina, Kara Ayers & Bonnielin K Swenor, “COVID-19 vaccine prioritisation for people with disabilities” (2021) 6:June The Lancet Public Health e361.
Flynn, Eilionóir, Disabled Justice? Access to Justice and the UN Convention on the Rights of Persons With Disabilities (London and New York: Routledge, 2016).
Fredman, Sandra, “Substantive equality revisited” (2016) 14:3 International Journal of Constitutional Law 712–738.
Gostin, Lawrence O, Safura Abdool Karim & Benjamin Mason Meier, “Facilitating Access to a COVID-19 Vaccine through Global Health Law” (2020) 48:3 Journal of Law, Medicine and Ethics 622–626.
Gugus Tugas Percepatan Penanganan Covid-19, “Protokol Perlindungan Terhadap Anak Penyandang Disabilitas Dalam Situasi Pandemi Covid-19”, (2020), online: Satuan Tugas Penanganan Covid-19.
Gulati, G et al, “People with intellectual disabilities and the COVID-19 pandemic” (2021) 38 Irish Journal of Psychological Medicine 158–159.
Hert, Marc De et al, “Prioritizing COVID-19 vaccination for people with severe mental illness” (2021) 20:1 World Psychiatry 54–55.
Hunt, Xanthe et al, “Impacts of the COVID-19 pandemic on access to healthcare among people with disabilities: evidence from six low- and middle-income countries” (2023) 22:1 International Journal for Equity in Health 1–12.
International Disability Alliance, “Reach the furthest behind first : Persons with disabilities must be prioritized in accessing COVID-19 vaccinations” (2020) International Disability Alliance (IDA) 1–3.
Januraga, Pande Putu & Ngakan Putu Anom Harjana, “Improving Public Access to COVID-19 Pandemic Data in Indonesia for Better Public Health Response” (2020) 8:November Frontiers in Public Health 8–11.
Kusnanto, Anton, “Hari Pertama Vaksinasi Tahap Ketiga, 900 Lebih Penyandang Disabilitas dan ODGJ di Surabaya Sudah Divaksin”, Suarasurabaya.net (June 2021).
Kusumawati, Erna Dyah, States Responsibility vs Domestic Control Measures of the COVID-19 Pandemic : An Analysis of the Current International Health Regulation ( IHR ) Regime, Rosewitha Irawaty, Metha Ramadita & Fitriyani, eds (Atlantis Press, 2021).
Lee, Yen Nee, “Brazil researchers now say China’s Sinovac vaccine is 50% effective — lower than announced earlier”, (2021), online: CNBC <https://www.cnbc.com/2021/01/13/chinas-sinovac-vaccine-reportedly-50point4percent-effective-in-brazilian-trial.html>.
MacDonald, Noni E et al, “Royal society of Canada COVID-19 report: Enhancing COVID-19 vaccine acceptance in Canada” (2021) 6 Facets 1184–1246.
McCarthy, Niall, “Covid-19 Outbreak: How Effective are the Covid-19 Vaccines?”, (2021), online: Statistica <https://www.statista.com/chart/23510/estimated-effectiveness-of-covid-19-vaccine-candidates/>.
Ministry of Social Affairs of the Republic of Indonesia, “Kemensos Dorong Aksesibilitas Informasi Ramah Penyandang Disabilitas”, (2020), online: Ministry of Social Affairs of the Republic of Indonesia.
Ministry of Woman Empowerment and Child Protection of the Republic of Indonesia, “Panduan Perlindungan Khusus dan Lebih Bagi Perempuan Penyandang Disabilitas Dalam Situasi Pandemic Covid-19”, (2020), online: Satuan Tugas Penanganan Covid-19.
Ministry of Woman Empowerment and Child Protection of the Republic of Indonesia ———, “Tanggap COVID-19 Inklusif Disabilitas: Berdasarkan Rekomendasi International Disability Alliance (ADS)”, (2020), online: Satuan Tugas Penanganan Covid-19.
Nazari Orakani, Solmaz et al, “Systems Are Overstretched from the COVID-19 Pandemic: An Interpretive Description of Disabled People’s Access to Healthcare and Disability Support in New Zealand” (2024) 12 Healthcare 387.
Nifosi-Sutton, Ingrid, “Realising the Right to Health during the COVID-19 Pandemic: An Antidote to the Pandemic and the Catalyst for Fulfilling a Long-Neglected Social Right?” (2022) 3:1 Yearbook of International Disaster Law Online 126–153.
Ningtyas, Ika, “Indonesia’s information gap affecting the disabled”, (2022), online: Development and Cooperation.
Nord, E et al, “Incorporating societal concerns for fairness in numerical valuations of health programmes” (1999) 8:1 Health Econ 25–39.
Norheim, Ole F et al, “Guidance on priority setting in health care (GPS-Health): the inclusion of equity criteria not captured by cost-effectiveness analysis” (2014) 12:1 Cost Effectiveness and Resource Allocation 2014, 1–8.
OHCHR, “Statement by UN Human Rights Experts Universal access to vaccines is essential for prevention and containment of COVID-19 around the world”, (2020), online: OHCHR.
Pawi, Andi Anugrah & Heru Susetyo, “Upaya Mewujudkan Kebijakan Ramah Disabilitas Dalam Pelaksanaan Program Vaksinasi Covid-19” (2022) 6:4 JISIP (Jurnal Ilmu Sosial dan … 2079–2086.
Pearson, Charlotte et al, “Covid-19 and the Crisis in Social Care: Exploring the Experiences of Disabled People in the Pandemic” (2023) 22:3 Social Policy and Society 515–530.
Perehudoff, S Katrina, Nikita V Alexandrov & Hans V Hogerzeil, “Legislating for universal access to medicines: A rights-based cross-national comparison of UHC laws in 16 countries” (2019) 34 Health Policy and Planning III48–III57.
Probosiwi, Ratih & Kurnia Nur Fitriana, “The Social Protection for Persons with Disabilities during the COVID-19 Pandemic” (2022) 9:01 IJDS Indonesian Journal of Disability Studies 17–35.
Ramadhani, Evyta Rosiyanti & Savira Anggraeni, “The Uncertainty of the Right to Health in Indonesia during Covid-19 Pandemic” (2022) 6:1 Journal of Southeast Asian Human Rights 55–71.
Rifaldo, Andrean, “Aksesibilitas 28 Juta Penyandang Disabilitas”, Kompas.com (27 November 2023).
Rotenberg, Sara, Matthew B Downer & Jane Cooper, “Making COVID-19 vaccinations accessible for people with disabilities Sara” (2021) 39 Vaccine 5727–5728.
Saputra, Eko, “Tak Perlu Malu, Penyandang Tunarungu Hanya Tidak Bisa Mendengar”, online: The Regency Government of Magelang.
Satuan Tugas Penanganan Covid-19, “Protocol”, (2022), online: Satuan Tugas Penanganan Covid-19.
Sekalala, Sharifah et al, “An intersectional human rights approach to prioritising access to COVID-19 vaccines” (2021) 6 BMJ Global Health 1–8.
Setiawan, Ferry Ardi, “Legislator PDI-P Surabaya Minta Pemkot Terus Perbaiki Fasum untuk Difabel”, Memorandum.co.id (2021).
Shaoxiang, Yu, “Jurisprudential Analysis of the Nature of the Right to Health”, online: Institute of Law and Institute of International Law, <http://www.iolaw.org.cn/global/en/new.aspx?id=36829>.
Shen, Angela K et al, “Ensuring equitable access to COVID-19 vaccines in the us: Current system challenges and opportunities” (2021) 40:1 Health Affairs 62–69.
So, Anthony D & Joshua Woo, “Reserving coronavirus disease 2019 vaccines for global access: Cross sectional analysis” (2020) 371 The BMJ m4750.
Tanasoca, Ana & John S Dryzek, “Determining Vaccine Justice in the Time of COVID- 19: A Democratic Perspective” (2022) 36:2 Ethics & International Affairs 333–351.
Toebes, Brigit, Lisa Forman & Giulio Bartolini, “Toward Human Rights-Consistent Responses to Health Emergencies: What is the Overlap Between Core Right to Health Obligations and Core International Health Regulation Capacities?” (2020) 22:2 Health and Human Rights Journal 99–111.
UAD; WHO Indonesia; Indonesia Ministry of Health; Clinton Health Access Initiative; Unicef, COVID-19 Vaccine Post-Introduction Evaluation Indonesia Country Report, by UAD; WHO Indonesia; Indonesia Ministry of Health; Clinton Health Access Initiative; Unicef (2022).
United Nations Committee on Economic Social and Cultural Rights, General Comment No. 3: The Nature of States Parties’ Obligations (Art. 2, Para. 1, of the Covenant) (United Nations Committee on Economic, Social and Cultural Rights, 1990).
United Nations Committee on Economic Social and Cultural Rights,———, General Comment No. 14: The Right to the Highest Attainable Standard of Health (Art. 12 of the Covenant) (United Nations Committee on Economic, Social and Cultural Rights, 2000).
United Nations Conference on Trade and Development, Impact of the Covid-19 Pandemic on Trade and Development: Lessons Learned, by United Nations Conference on Trade and Development (Geneva, 2022).
Versteeg, Mila & Tom Ginsburg ———, “States of Emergencies: Part II”, (2020), online: Harvard Law Review: Blog Essays <https://harvardlawreview.org/blog/2020/04/states-of-emergencies-part-ii/>.
Versteeg, Mila & Tom Ginsburg, “States of Emergencies: Part I”, (2020), online: Harvard Law Reviews: Blog Essays <https://harvardlawreview.org/blog/2020/04/states-of-emergencies-part-i/>.
WHO, The International Health Regulations (2005), 3d ed (Geneva: WHO, 2016).
World Health Organization & UNICEF, Guidance on developing a national deployment and vaccination plan for COVID-19 vaccines: interim guidance (2020).
World Health Organization and UNICEF ———, “Disability considerations for COVID-19 vaccination” (2021) 8:3 Frontiers in Public Health 1–17.
World Health Organization and UNICEF, “Disability considerations for COVID-19 vaccination” (2021) 1–17.
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